WENDY'S STORY

 I read your request yesterday and for some reason I could not find it in me to answer. I took my babies for a walk, twice, cleaned my "cell" twice, relived many hardships in my life while bawling my eyes out, off and on, and began to straighten out my papers. The written medical history of how I came to be like this, live this way.It is all there. The decline in belief by others, to my decline in health to my decline in standard of and quality of my life. I am sentenced to this "cell" for standing steadfast by my belief in myself and knowing my own body all these years. How dare I disagree! This, to be exposed, would bring head hanging, hand rubbing fear and embarrassment to many at this exposure of ignorance, til now, well hidden?. Oh, so young when it all began now being blamed on age?On going back in my old medical records (1993) it is all there, mention of spastic leg and legs. Stiffness, hand problems, anxiety, upper back spasms, incontinence issues, generalized muscle pain, tired, in agonies of pain. All related to 2 back surgeies gone wrong. Spinal cord permanently injured. Related, diagnosed by professionals-moderately to serious disability. Recommended I put in claim for full wage loss and disability. Then I must leave, at night, quietly for related and non related reasons same as this time around 10 years later only currently it is more complicated, involved further.Enter Dr. Ego into life, 11 years ago, who proclaims me an exaggerator, possibly "For secondary financial reasons" and "malingering" among the several sins to why I would "claim" these things that obviously "don't correlate with neurological findings ".The possibility of exposing a fluke (after all I must have moved for a reason?)as a good doctor this was to good to be passed up so he promptly picked up the phone and called the responsible insurance company and boldly told of his expert impression of my "true" thoughts. He labeled me a possible fraud. He even said I frightened him a little. Eagerly he sent requested reports to which I can not stop to this day. I lost my entire future. My children lost their mother, I lost myself. I drew pictures of the body with diagrams of areas affected and side notes as to what was felt. These almost identical rough drawings and notes are found on all the sites these days drawn much more professionally and clearly labeled in medical terms.I was laughed at, ridiculed and patronized by my claims, stories and drawings but I was desperate for an answer. I believed me! I attempted filming my leg spasms in 1995 of which clearly shows the fluctuations, but the pain got to me. I became desparate enough in 2007 to finally grit the old teeth and filmed what is now on You Tube. Something finally gave and I was diagnosed in July 2008 by Dr. Gillian Gibson Director of the UBC Neuromuscular Disease Unit of Vancouver General Hospital, B. C. Canada. I had it since my "bad back" surgeries in '93 and '94. The Doctor who stole my life all those years ago described in his notes back then of my bodily"exaggerations" exactly as how SPS affects the human body as recognized by the medical community today.Egos and life quality do not meet hand in hand. I was run " outta town" for daring to speak the truth, tell where many failed me as they must others, all over the world. I have at least proven I always spoke of what I knew and it was always the truth of reality.So your request brought many emotions out and one is I can't get much lower than I live now. Still due to high expectations from one as sick and helpless as I, it is still requested and required. I think I will just get sicker, alone, till I do as many wish and just die. Then I can be laid to rest with almost any diagnoses.Except I plan to leave my body to the neurology department of VGH and specifically for study of SPS and Cauda Equina Syndrome, a spinal cord injury.

I hearby do state to you and your affiliates that you may use anything I have or may write, show my photo with my daughter, tell my story or in anyway see fit to use what I may produce which could help in diminishing this mystery known as SPS. Please use my real name Wendy Louise Dalton. If in any way I can contribute to bringing awareness to this insidious disease I throw in my hat. My daughter agrees with me totally as she grew up as this as a big part of her life too.In 2007 I wrote a little auto biography about being 10 feet from homelessness. It was printed in the local paper. Not taken too seriously by anyone but me. Today I live with one foot precariously there at all times. My future is a complete unknown and I am completely alone. The trail here can be followed from the first doubting of my word, (automatically assuming I was a Liar), medically in 1997 to today.

Tinman Wendy  D